Thoughts & Reviews

Indie Author: SMA & Spiranza Share (Disability Advocacy)

Shane and Hannah are an inter-abled couple I recently started following on YouTube. Disability advocacy, acceptance and whatever other terms apply are very important to me and are themes that tend to pop up in my writing, even if just a little. Shane is receiving shots for his condition (Spinal Muscular Atrophy, or SMA) from a drug called Spiranza. 

They’re asking people to share the video to increase access to the drug and to also share the benefits it’s done for Shane.

So here we are. Enjoy, Arcians. Keep moving forward. ☺️

 

Brief Humor & Check-Ins

Joyous & Crying Kids

This past week I witnessed three great things:

  1. A child laughing in a foreign hospital thousands of miles away as my dog entertained him via video. His mother said this is helping him recover.
  2. A child crying and hugging his drug free mother who now has full custody of her children. I helped them get there, behind the scenes.
  3. I actually got to work early. Miracles do happen.

It has been a good week. Hallelujah.
Continue reading “Joyous & Crying Kids”